I haven't posted for a while but I'm having such trouble with my daughters school and not sure where to turn.
My daughter just turned 5 she started school in September and they were fully aware before starting that she was a brittle asthmatic as her older sister has missed time off school due to her being hospitalised.
In the last 4 weeks she has only attended school for 3 days, had two hospital admissions, three courses of antibiotics and 5 courses of pred needing to be on three hourly nebulisers at home. For the third time since starting the school the head has requested I meet with her regarding my daughters attendance and to be honest I'm at my wits end.
I already had to get the brompton to write to the head as they have a ' every child must go outside at playtime policy' which meant on days I knew the weather would trigger her asthma I was reluctant to send her in after pervious episodes of her being sent out and ending up in hospital later that night. She is well enough to be in school just not well enough to be out a break times when the weather is problematic to her asthma - when I mentioned this to the school they said every child must go out as teachers need a break from the kids! Wasn't the response I was expecting that's for sure
They've also said to me that other children have asthma and don't miss time off school like she does - again one of the asthma nurses at the brompton called and spoke directly to the head and explained the different types of asthma and how they effect each child.
I've spoken directly to the educational welfare officer who is completely understanding of my situation but the school just seem to be keeping on - if this is what it's like in her first year I hate to think what's its going to be like when she's older.
The last time I saw the head she wanted me to say I'd endeavour to make sure she attends school - now I still have to drop my older daughter off so not like we're all at home having a party so find her comments insulting to say the least. She's wasting mine and her own time by getting me to meet with her saying the same things and her just not listening - now whilst I appreciate league tables and all that jazz surely they must have some system for poorly children? Any info on this topic would be greatly appreciated.
She currently takes seritide 50mg 5 x twice a day, montelukast, omeprozole and citirizine daily and salbutamol, atrovent inhalers as well as salbutamol nebs when needed. She's under the royal brompton as well as our local hospital