Sorry about this but I am feeling quite gloomy lung-wise atm (while as ever being aware it could be a lot worse and already is for some).
Thought I was coming out of the flare-up I've been having now for over a month. Was getting better, then kind of peaked and stayed, now is getting worse again, all as I reduce pred dose. Really not liking the implications here...am glad pred does seem to work as I didn't think it used to but I don't want to be on it long.
Basically, for me it's been the worst it's been for ages and it's been affecting what I can do, my work etc esp as every time I think I'm better and try to do things as normal it seems to get worse again, and I had to take a week out where I couldn't really even work from home. Feels like what should be a perfectly manageable workload is getting on top of me and I'm making stupid errors (partly because I'm knackered). I'm coming up to some big career decisions/applications and need to be on top of it all (plus I am worried I couldn't manage to do what I'm applying for if things were like this - I can't just take a week out where I don't leave the house and can't work properly.) Not to mention, although I don't earn my living from it, that it's making singing difficult and I love singing.
Cons appt this Wed and I am completely petrified. I need some way of getting all this across to him and for him to take it on board. He is nice and has listened more than others in the past but has been focusing on the breathing pattern side of things (defo improving, physio agrees) and thinking asthma is controlled; it really was improving before all this though I'd have liked to see a bit more control, but now it's sliding back towards how it all was before I got some effective medication - except the scary thing is now that I'm on loads and it doesn't seem to be helping as much!
I am absolutely terrible at communicating in these appointments (I can present in my masters classes, do public speaking etc without issues but this I can't do) so even though I've thought about it all and will be writing down reminders etc, I am terrified I will completely muck it all up and not get across what I want to say. Not asking for a miracle and I know to him it might seem relatively trivial given it's RBH and they see really complex severe cases, but I don't know what I'll do if I happen to be having an ok day on Wed (my lungs are great at making their better days coincide with appts then getting worse after) and he takes that as 'everything is ok, carry on as you are' because I really do need him to at least be aware that no, it's not all great and well controlled, have a rethink and see if there's anything that can be tweaked.
Anyway sorry about that rant, just needed to get it off my chest so to speak and crystallise it by writing things down. Not really expecting anyone to have a solution but it feels like it's really getting in the way right now.