Firstly, I would just like to say how amazing this forum is! I was diagnosed less than 4 years ago with brittle asthma and until now have felt very alone. None of my family have asthma, and friends with asthma only suffer very mildly (not to be sniffed at though!). Now, reading everyone's posts, I realise that there are lots of people suffering the same problems/symptoms/side effects as me!!!
It's so comforting to know that others have problems with paramedics understanding the seriousness of an attack for non-wheezers (my last admission was worsened due to a paramedic diagnosing a panic attack and refusing to treat me for anything else - thank you very much for landing me in HDU on an aminophylline infusion!!!)
Does anyone else get abdominal pain/swelling and skin peeling in the mouth after taking pred? I've been on it constantly since last July and cannot get lower than 15mg daily without my asthma flaring up and taking the dose back to 40mg before weaning back to 15mg.
I have a bone scan next month to check for osteoporosis - is this reversible? Or is it a case of once it has started there is no way back?
Thanks for any advice!!!