I have come onto this forum for the first time today hoping to see I'm not alone!
I had to take my just-6 year old to the doctors today as she had a bad night and I was going to nebulise her but realised the nebules were out of date. I left feeling very upset and frustrated that I was once again told that I wasn't handling her asthma well. The doctor thought it inappropriate that I had been issued a nebuliser and that I wasn't giving her daily becotide.
A little bit of background. She has acute viral-induced asthma. It's very predictable, 3 days into a cold she gets bad and I start her on treatment with her salbutamol inhaler. I assess the situation and start on 4 puffs every 4 hours or so. As and when it gets worse she can end up on 10 puffs every hour for a spell, but I wean her down to reduced amounts and longer periods between. She hasn't been hospitalised for over a year, but from the age of 18 months had 14 stays in hospital.
She was under a consultant but he said I that knew what I was doing, issued a neb for emergency to give me time to get her to A&E as she goes down hill so quickly, and signed her off saying I would do what the hospital would do and knew at what point to take her there. He rightly said that quick intervention at home would control it better. And it works. He also said that daily Becotide was a waste of time and that even on it she would still have these episodes so not to bother.
But I have had so much grief from GPs and have had to explain and justify my actions so often! Am I on my own?
Now I don't need to take her for clarification of what to do when she gets bad. But in the earlier days, they often listened to her chest and detected no wheeze. They then packed me off telling me she'd be fine, even though she was clearly struggling to breathe. On these occasions she has always, as I predicted, gone down hill rapidly after and needed hospital treatment.
Why do they not instead take Oxygen levels at the GPs as an indication of how ill a child is as they do at hospital? And why are they unaware of the course of treatment given during an attack or episode? So many GPs have been so alarmed when they have heard how much salbutamol is given by inhaler or nebuliser in hospital.
It worries me that they are feared of advising to take more than 2 puffs twice daily or when needed-which frankly has no affect when a child is struggling! Is it just me?
My GP says I should give her becotide daily now and to take her back next week. He will then see that she is fine (Which she will be as the cold will have passed and she won't need her inhaler until her next cold!!) and he will conclude that the becotide has fixed the problem!
Would love to hear your thoughts and to hear if you have had similar problems.