Since starting university 6 weeks ago i have had 2 overnight hospital stays, 1 week long visit and another trip to A&E where they sent me home after a few nebulisers. I'm really shaken and have really lost my confidence in doing anything. I've been out of hospital 3 days, but im still definately not 'right' i just feel like doing anything completely exhaustes me and i get breathless so easily. the respiratory nurse kept reminding me that it would take time, i just guess that i hoped it would be a little easier than this.
Anyway, enough of the moan, Uni have been really supportive from day one, they have arranged people to come with me to A&E of paid for taxis for my friends to get home if they come, theyve sorted all my work out and given me extensions and stuff and recently theyve offered me access to a fund for disabled students which i am eligable for. Its basically for things that will help me manage my condition and keep me well and out of hospital. Given that i have basically nothing other than my prescribed inhalers, spacer and peak flow meter is there anything that anyone can think of that would help? Im tempted to see if it covers things like hypoallergenic covers for bedding? Does anyone know if pulse oximeters are actually a useful guide as to how well your lungs are doing? that kind of stuff? any advice would be helpful, im sure there must be things, i just cant think of any!
Finally, Home nebulisers, i know theyre not for everyone, but im tempted to talk to my respiratory consultant about it. i just feel like if im going downhill fast early intervention is key. I feel like i couldve avoided 999 calls if i could have done a neb at home. I obviously know that its important not to be over reliant on them as when imin a bad state nebs just dont do it anymore, but i feel like i might be able to avoid getting as ill. or even just use it while im waiting for the ambulance, so treatment is as quick as possible? does that sound sensible? is it worth asking about? thanks for any help! im fairly used to asthma but not of this severity.