I'm relatively new to AUK, so i hope this is in the right place.
But i'm curious about when its time to put your foot down with your consultant/healthcare team?
so far this year i've had four intensive care admission...(and its only May) and not an awful lot seems to have been done about it.
I know that i'm on maximal therapy but i cant help feeling that i should be getting more out of my care.
(maximal therapy being, ciclesonide, salmeterol, fexofenadine, nasonex, adcal, pred (30mg down from 40mg for 6 months)theophylline, lansoprazol, spiriva respimat, accolate, and the old ventolin/bricanyl all titrated to embarrassingly high doses for my age)
i dont have home nebulisers because my consultant believes that 'if you need a neb, you need to be in hospital' so i ended up puffing through a canister of ventolin and bricanyl inhaler or two each week.
but what nerves me the most is that i spent my 18th birthday in hospital, x-mas and new years, not mention all the valuable term time that i've missed at school.
(and my GP then had the nerve to refuse all my prescriptions, telling me that i didn't have asthma because if i did i shouldn't be symptomatic on all this medication which of course lead my blood turning to battery acid resulting in another ICU stay three weeks before my exams)
so overall i guess i'm pretty fed up..
so have you ever put your foot down and stropped at your consultant or GP?
was wondering if anyone had any similar experience with Prof Corrigan? (Guys and st thomas's clinic)