Been an asthma patient since I was 18 months old and spent most of my childhood in hospital, had a intensive care admission when I was 14 which I don’t remember but got told was very serious as I was ventilated and if I didn’t wake up at a certain time they were going to turn the ventilator off as there was no chance I would have made it. Asthma seems to have calmed down since then and then moved away to derby to study there and felt like asthma totally disapperared, l moved back to my parents in London after my dad got really ill with liver failure and it got too much for me being away. And since then my asthma has just got worse and worse and my local hospital have no idea what to do so got transferred to RBH and that was the best decision they ever made.
Had my first app at RBH in November 2011 with Dr Menzies Gow and with my history he started me on 40mg for 1 week and then reduce by 10mg every 7 days till I am on maintenance dose of 10mg daily.
Had no bad asthma attacks or symptoms till I managed to catch a chest infection and then got increased again to 40mg for 5 days and reduce by 5mg every 5 days till back on maintenance of 10mg. Didn’t help as peak flow started decreasing and was quickly getting short of breath and needing my ventolin a lot more so spoke to RBH nurses and they suggested go back to 40mg for 7 days and then reduce by 5mg every 7 days. I was ok on this, till I started noticing the side effects of prednisolone and how much I have changed since being on this high dose.
I seem to have all the side effects such as: moon face, weight gain on stomach and general body swollen up. My bones are a lot weaker as I have osteopenia and family history of osteoporosis so my bones are more prone to fractures. As well as the bone problem, I seem to have very weak legs and arms that even holding a full glass hurts my hands and I cannot stay standing up for too long as my legs will eventually not be able to support my body and I will just fall down as I have done about 4 times now. Also have really bad acne all over my upper chest, neck line, neck and face that doesn’t seem to calm down and is so itchy, also seem to have more hair growth (nasty I know and I’m sorry about the detail I’m going into but it is really wearing me out). My stomach problems have also seemed to get worse and it’s just so uncomfortable. Now the biggest change I have noticed is the mood swings and total personality change. Can’t sleep at night, can’t sleep during the day so really tired, have no interest in anything I do or even used to enjoy, if I try to do something, I have no concentration levels at all and get bored so quick. Also have no tolerance of anything, get short tempered and irritated so quickly and really angry at the tiniest thing. My immune system doesn’t exist anymore as I seem to catch whatever is going round which in turn flares my asthma up so its a vicious cycle. Don’t know if this is relevant to being on prednisolone but my eye sight seems to have changed, I already have glasses but even whilst wearing my glasses I can’t see clearly so need to blink a few times to get my vision straight.
Sorry for the long read, but can anyone else relate to this as I’m getting really worn out and seems like no-one understands especially with the mood swings and I can’t seem to understand it myself. I’m so worn out from it all.