Following my holiday in HDU last month, the cons has been trying to get me on xolair with a bit more vigour as I've been slowly deteriorating since I gave birth to my daughter in March. I went at the end of June for the spirometry which was at 72 % but my sputum results from my admission showed I was hosting a penicillin resistant infection so they asked me to come back a month later and have them done again, which was yesterday. So off I went to the hospital...again!
I get to the hospital really wheezy and had my spirometry which is now 80.5, rounded up to 81, of course! This would put me out of any consideration fo xolair. I'm due to have my CT scan on friday so the cons has decided to ask me to go back again in 4 weeks for another spirometry as they really think I need it. They have then said that if I don't respond to the xolair, or they can't get me funding I suppose, they will have to send me to Wythenshawe to the difficult asthma clinic as the only other option for my drugs is to add on permenant prednisolone which is not ideal as I get really bad side effects (insomnia, changes to my eyesight leading to bad migranes, weight gain).
I'm not sure about my spirometry as I can produce normal results when really ill. They have always put it down to the fact I play the flute and sing, both of which have taught me excellent breath control. In fact my paediatrician used my flute playing as a form of physio when I had been unwell. Anyone know if they are likely to get funding for xolair in this situation. I'm also dreading a new cons, new clinic, more tests etc etc as I've only just got used to my new cons I met in Feb and he is lovely!
So all in all a really really bad day and that was without the horrible health visitor who made me feel like a bad mother for starting to wean my daughter at 20 weeks old - even though she is completely ready! She even told me that I would make my daughters chance of asthma worse (I didn't bother telling her, she already has it). I'm beginning to feel like my life is falling apart, I've had a few years of really good control and now its back to the uncontrolled asthma dominating life I had before.