I have been a reader and poster to this site for a number of years now who used to post regularly but stopped because of personal reasons. A few threads over the last few months though mean that I can not just sit and read but feel have to add my own comments from hopefully a less biased viewpoint as an â€˜outsiderâ€™ so to speak.
From reading the threads some of which can be very informative from my own perspective as I am on a number of asthma medications some of which have changed recently I am saddened by what seems like harsh â€˜policingâ€™ of posts which because they are contrary to mods views and those of mods friends get shot down/bullied off the site or posts edited/deleted and banned. I know there is a need for moderators but I think that they should try to be more impartial.
The â€˜brittleâ€™ gang has long been a contentious issue and cause of upsets on the site in the past. The fact that inevitably you will get the extreme ends of the spectrum of asthma coming to the site for support is an inherent problem. But I do not think that this should mean brittles/severe asthmatics get sensored for describing experiences and asking questions about them. Maybe for newcomers a general warning about the fact that some threads may be sensitive and apply to only the minority of asthmatics would be apt. Must also take into consideration the fact that the majority of people reading the site will be adults and as such should trust them to be able to make their own judgements on what they are reading. This is the world wide web when all is said and done and a lot more graphic information on procedures etc can be found by simply googling.
Some posters can come across quite aggressive though they probably donâ€™t realise it or mean to. Rather then deleting their posts a pm suggesting a better way of wording their post so as not to come across as so would be more constructive. Freedom of speech is one of the few freedoms we have these days and I think it is important that all people get a say and threads not closed just because one persons rant/ask for help might spark others feelings and opinions. So long as it doesnâ€™t get personal whats the problem?
I personally would like less infighting and more exploration of peoples opinions on treatments, protocols and ways of dealing with an illness that is little understood and underfunded in comparison to other major diseases such as cancer.
I go in peace now,