Has anyone ever got to the point where the endless battery of tests just wears you down and you want to say stop the ride I want to get off. Having been through all the asthma ones sometimes more than once the never ending PF recording that I was doing because although not demanded it made the people at the RBH happy. Due to the tummy thing I have had test after test looking for a cause, MRI's CT's various ""scope"" tests and then they tell you that it is not the ""gold standard test"". There is no doubt it happened they have lovely CT pictures of one of the worst cases of Ischaemic colitis they have seen but they still don't know for certain what caused it. Now they think something went wrong in my brain when I was very ill and because I was so poorly it was not noticed and as I recovered it was put down to muscle weakness, I do want to know what went wrong and where and I do want it fixed if possible but frankly I am sick of tests and hospitals of probes.
Anyone else ever felt like this, I feel guilty that i am not leaping about with joy at being refered for yet more tests. I have physios and OT's helping me and assessing me, I have just been through the very confrontational DLA application which was fine they awarded both higher rates but the explantion letter and the forms made me confront my limitations now.
Sorry for the ramble I know I should be grateful that I have the all the resources of the NHS working to help me, but I am tired and just want a break from it all.