I was having a look at the CF forum mainly because I wanted to see if there was any news on someone I met in the RBH anyway I came up with these 2 things:
If you have a port-a-cath you can get free prescriptions - it counts as a fistula apparently
If you get DLA the rules have changed regarding hospital admissions it used to be if you are in for 4 weeks after than you lose DLA whilst you are in now they tell you inform them everytime you go into hospsital. Apparently they now allow you to be longer. I will be instersted to see how this affects those who do amino 6 weekly cycles, I will call them when I go in on Thursday and see what they say!