I feel that people including are nearest and dearest try all they might dont fully understand the implications are illness has on are day to day lives. I think this has been mentioned before but it is excellent in putting across in lay terms how day to day living affects us. Please read and show your family. I have emailed it to cons!! i think all medical staff should read it.
Thanks Andrea for posting this, I've seen it before and thought I'd bookmarked it but then couldn't find it when I wanted to!
It really does sum up the effects of having a chronic illness, and that it's not just about not being able to breath but about a daily lack of energy, weakness, poor sleep etc. Some of my friends and family tend to think that if I am not in hospital I must be alright, they find it hard to understand that if I do something like go out or cook a meal one day, I will be exhausted the next day
Sometimes I find the exhaustion and weakness more limiting and frustrating than the shortness of breath, does anyone else feel like this?
Em H
Yep Em i feel that way too, regards family and friends i found understood better when they had read the spoon theory it really does sum things up.
I bought 2 t shirts of their site in the nite!! one says "" sick and tired if being sick and tired"" the other "" fragile handle with care"" i think they sum me up quite nice, pitty they dont have one saying ""please dont wind me up, irritate me or let me near the fridge im on pred!!""
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