Hope you are all ok and not suffering to much with your asthma!
Just joined tonight, didnt no this was here and i now dont feel so alone.
Just to introduce myself really, im 21 and been asthmatic since i was around 5 but got told on the 1st of February this year i was what the doctors see as a brittle asthmatic.
Ive had 11 admissions since this diagnosis, including 5 i.t.u ventilation admissions. Since the diagnosis of being brittle asthmatic in feb to now as i write this message i have had less than four weeks in my own bed im always in hospital..on the same ward. Im on a heck of a lot of medication this being ventolin 4times a day and PRN, Spiriva 1 times a day, Pulmicort PRN as needed and just been told this can be used as a reliever, Seretide accuhaler (500) two puffs twice a day, Mucodyne capsules (375mg) 6 a day, Montelukast one at night and Uniphyllin (400mg) two a day and im on a continous prednisolone standard dose of 30mg a day. Being on this i thought atleast it would get easier my asthma but it hasnt even settled one little bit. As i type this in my laptop my third night at home since my last discharge i can already tell im heading for another attack. Im also on a lot of other medication for other health issues but they have been looked at to see if they react to all of the above medication and nothing has been identified.
As im from a smaller town area our local hospital to put it nicely is not very good and on my last admission the doctor told my mum he had never heard of someone being 'brittle asthmatic'. At present there is also no one that specialises in asthma in my hospital and i go under a locum consultant who is different on each admission...which obviously is not helpful at all. Ive been told i need a nebuliser by the intensive care consultant but can not get one as funding was declined...and trying to do my degree at university i bet most of you can guess i barely can afford to eat never mind pay the money out for a nebuliser.
Basically i feel asthma has ruined my life well and truley....im really really sorry for being so negative reading through all the posts everyone seems so positive but im at my wits end now!! Im having to repeat my final year at uni due to absences and im a dance teacher aswell in my spare time and can not do this anymore just watch. Ive danced since i was 5 and taughtnow for 10 years.
Was just wondering has anyone experienced problems were they feel there just not setling at all with their asthma. I no medical advice cant be given but just to no im not alone at the moment would be great!
Sorry this is such a long post