Well I'm back to square one again ... the steroid reducation didn't work! Managed to get down to 2 tablets a day for 3 days but couldn't catch my breath, kept falling over everytime I stood up and constant headache, so I'm back up to the full dose for a week then they will start again! Had enough of this now and want to go back to work but seen as I cant even manage to walk round the supermarket I wont be able to manage work!
I had the Brochoscopy last week and it was awful. The sedation didnt take so I was awake through the whole thing. The docs said I did really well but I thought I did terribly. I felt everything and the worst bit was the lung wash. Being able to feel the saline running into my lungs I felt like I was drowning. Really dont want to go through that again! Anyway they said I dont have VCD, but they've taken some samples and biospys to check and I get the results on 2nd December back in clinic. I'm also being referred to a chronic asthma specilaist at Wythenshawe, Dr Niven, but his waiting list is apparently massive so I wont be seeing him anytime soon!
Finally had a call from my local Asthma Nurse, its only 4 weeks late! She was supposed to get in touch 48 hours after my severe attack 4 weeks ago ... its OK love I only nearly died!!!!!!! No rush!!!! Anyway shes seeing me next Tuesday to go over whats been happening to see if there is anything else she can do to ease my symptons at the minute. Better late than never I suppose.
Sorry for the moan and rant just really had enough now of being told that they don't know why I'm SOB, exhausted and voiceless. I know they have to rule things out but I'm really sick of them building up my hopes for a diagnosis only for them to then say no its not that! I have this feeling I'm going to have to undergo tests on my heart next as they've eliminated most other things now. I just know though that they will turn round and say everythings fine.
I'm sick of feeling like this and really want to go back to work and have my life back and to be able to have a normal sleeping pattern again would be amazing.
Sorry again for moaning, just having a bad day