I thought I'd post some really positive news
I've seen my consultant today following my 16 week trial of Xolair, and my lung function has improved dramatically and at the same time I've become far less symptomatic. They've agreed to keep me on the Xolair as it appears to be working. This is really good news as it's the first thing that appears to have really worked well for me and we've even talked about coming off the long-term Pred which would be fantastic although he did warn one step at a time and I may never be completely free of the Pred especially around stressful times, but for now this is fantastic news.
The positive sort of side-effect of the Xolair is that I have very limited hay-fever symptoms now whereas before I would have been almost confined to indoors when the pollen levels were high.
The real test will be this Autumn/winter first with the fungal spores then with the cold as they're my mega triggers which have had me in Costa regularly for the previous years. I'm hoping the Xolair helps with the spores as that's allergy based, but I don't know about the cold. Anyone got any experience of Xolair here?
Anyway, I just wanted to share the good news