Sorry to come here when things are bad. I'm not sure what anyone here can do - I just need a place to rant.
I'm struggling a lot with my asthma and other medical stuff at the moment. I'm on 40mg Pred and Omalizumab but still struggling with falling peak flows and difficult symptoms. I'm back at the scaring others phase. Even had my consultant contact me and remind me I must go to A&E if necessary. I've had so many medical appointments that in the last three weeks I've actually been at the hospital more days than I haven't.
This would all be enough to handle alone, but I'm also trying to balance this with my final year as a full-time student and thinking about jobs, housing etc for afterwards.
My uni had been partially helpful and provided me with a support worker which I had found really useful - she helped me keep everything together, manage all my appointments, and liaised with other uni staff for me, especially when I was unwell. It took a lot of the pressure off me which in turn made my medical issues 'better' (well slightly!) because I felt I could cope with them. She knew how bad my asthma could be as she'd been with me on one of my many trips to Costa Del NHS via priority boarding AKA resus...
Recently I've missed three appointments with her due to hospital appointments - two I knew about in advance, one was an emergency so couldn't give lots of warning. I've had a letter today telling me the support has been (not even being - no chance to discuss) stopped because of the missed appointments indicating that I'm not finding it helpful.
I'm so angry - I would much rather have been with my support worker than 'enjoying' Costa. It's been made out that I've lied about these appointments, as if no-one would actually have than many appointments...
I find it hard enough to cope with the asthma and medical stuff. This is too much and I don't know what to do.