I don't really expect anyone to reply just need to have a good moan
I was due to go to the rbh last week on Wednesday but no beds and then again on Friday but again no beds (i understand that they are very busy) I was due to go for a steroid wean!
i had been a bit of colour all week and by Friday evening gave in and went to local a and e! had iv hydro, magnesium and amniophyllin and back to back nebs. been trying to get discharged all week and even asked to be transferred to the brompton if they had a bed, this didn't happen as local hospital could never get hold of anyone.
the problem is i am at the end of my tether with it all! my local hospital say that the rbh need to be involved but they dont seem to be doing much and rarely return calls, emails etc.
my local hospital are also questioning the point in a steroid wean as they don't see what is going to happen after this! the reg just said that if i do it after a couple of week i will end up back in, this fills me with little hope of getting anywhere. the reg told me to ask them for sub cut bricanyl but when i mentioned it in the past i was told i needed a steroid wean! i feel like i am being pushed from pillow to post and getting nowhere.
The other problem is that the steroid wean is going to take three weeks apparently and i just spent five days in a side room in local hospital and nearly went nuts, i know i will never manage 3 weeks away from home, no visitors!
sorry to moan and i know some people have made lots of progress at the rbh but i am getting no where fast ( have been going for two years)
i was wondering if anyone has done the steroid wean thing and how they got on, or if anyone has any advice.
i am sorry to moan but just don't know what to do!!