Just wanting some advice from others in the same boat. Recently had another admission and things went downhill very fast. Tried to get to GP but it all went wrong and ended up with me deteriorating at GP surgery and them calling an ambulance. Ended up quite unwell in HDU.
Went to GP since I have been discharged and they were commenting on my strategies for coping in an emergency situation and in making the right decision. I know they are just trying to help but I kind of feel like they are suggesting that I am being irresponsible by trying to get to the surgery instead of just staying at home and calling 999.
The thing is, its really hard to know what to do for the best. Sometimes I go to GP, get them to listen to my chest. They then agree whether I should start steroids and I go home. Other times, I go to GP and things get worse very fast. In these situations, I should stay at home and call 999. The thing it, I never know which its going to be until it's too late. I find i so frustrating and they make me feel guilty when I get it wrong.
I feel frustrated that they dont understand how hard it is making an accurate judgement when you are ill, especially with asthma that can change from minute to minute. I also feel that they only see it from the medical point of view. I also have to decide whether I will go to work aswell. Sometimes I go to work when I am probably not well enough, but I have a mortgage to pay and an employer to keep happy.
I just wish they could see how frustrating it is from my point of view. i am not trying to be an awkward patient but just a young adult trying to have some sort of normal life. I think they feel like I dont take it seriously, which isnt the case at all. If I think about my asthma too much then I just end up getting depressed about it all. My GP seems to think that my flippant comments mean that I do not understand the severity of my condition and she is worried by this. On the contrary, I am more than aware how unwell I can get. I just cant cope with talking/thinking about it too much.
My husband says should see another doctor but I feel that I need to go back to see if I can get her to understand where I am coming from.
Sorry about rant. Steroids causing high levels of tearfulness and emotion. post hospital tiredness playing a part too I think. Would be great to hear from anyone else who understands