Im getting so frustrated as to my daughters condition and the confusion that seems to surround it.
She was diagnosed with Asthma due to history. Then was found to have food in her lungs on bronchoscopy (quite a shock to say the least!). She then had a test and was found to have an abnormal swallow so breathes food into her lungs.
A couple of months later, she got rushed into hospital with Adrenal Insufficiency and a non existant cortisol level!
They then thought it may not be Asthma after all due to such complex symptoms.
After a billion tests, they said she probably had Bronchiectasis too. Finally a CT scan ruled that one out! BUT her xrays show dilated vessels.
At present, she has dilated vessels in her right lung which is of concern, she doesnt swallow correctly and is still aspirating and choking regularly. And on top of that she exhibits Asthma symptoms and Adrenal symptoms!!
And the whole time, every app (and there are lots as she is under 3 consultants and other health proffs) brings new tests and procedures for her to endure. All of which leaves them scratching their heads.
I just feel so confused!!!!