I'm so disappointed, after seeing NWLC yesterday they have decided I have a bad breathing pattern developed to protect my lungs. Its only seen in patients with asthma apparantly. Explains why I've struggled with inhalors and the only thing which has worked has been a nebuliser. Problem is they won't touch my asthma medication. Solution is physio which can take up to 18months to work and is likely to hurt. Until I do this they won't alter my asthma medication as peak flows & lung fuction tests don't give an indication of how my asthma is. I just don't have the time to do this I meant to be starting a new job in a few weeks ans ivf in the middle of the year. Without getting off the pred losing the weight to start the ivf is going to be nearly impossible.
Has anyone else had this problem? I need a quick fix. I'm desperate to start controlling my life again and the only way I can is by stopping all my medication. I just don't know what to do, time is the one thing I don't have.
Should I be honest and get back in touch and say I'm not happy to do the physio. Not sure what will happen if I don't sort this 'breathing problem' out. I think I'm so upset as I'm finally admitting how badly asthma is affecting my life. Nebbing up to 4 times a day takes time. I'm scared as I've been told measuring peak flow in my case in useless so that puts my action plan out the window.
I just feel like life has kicked me yet again. I appreciate I'm better than many of you but it still hurts.
Any advice would be helpful.