Not sure anyone can help me with this - I seem to baffle medics so not expecting miracles [btw if I feel things are getting really bad I WILL get help of some sort]. I just find it very hard to judge what I have to put up with and what I ought to do something about when I can't go by the usual guidelines. plus breathlessness is *usually* chronic and doesn't turn into attacks - or hasn't so far.
Just a bit stuck and wondering what to do if:
*chest is acting up a bit more than usual - the 'corset' feeling I mentioned and I can also tell things are going on because my ribs are also acting up - not trying PF again! At least I can take ibuprofen for that but it's a sign things are active.
*PF is no use. It never is.
*No point seeing GP, she can't help, she has said she has no idea what to do with me.
*OOH generally not helpful unless it's urgent, which so far it has never been - just makes me think it might be soon but then (luckily, I know) doesn't get further.
*Cons. appt, when it is remotely possible I might at least get my hands on some drugs (of the legal, sanctioned variety of course, not planning to nick them from the cupboard lol), is 1 month away. I am seeing if there is any way I can get it brought forward or possibly try something before I go but not holding my breath, haha. GP vaguely said she might get in touch with cons. a couple of weeks ago and I rang her secretary today who said GP hasn't done it so far but will ask her about it, but don't know if she will or if it will do any good so I am assuming I have a month to wait unless I hear otherwise.
Does anyone think the AUK adviceline would be able to give me any guidance on this or is that only for 'real' asthma? I know it's better than being brittle and in and out of hospital struggling like some but honestly I don't know what to do and no-one seems to be able to advise me given I don't fit any normal criteria - everyone always just says 'wait for your appt, see what tests say' (zilch, so far) but no-one ever tries to give me any advice about what to do while I'm waiting.
I hope this hasn't been too much of a rant. Just hoping with all the combined knowledge on here somebody might be able to point me in the right direction.