Since the lovely people who helped on the other thread expressed interest in hearing how it went thought I would give that one a break and start a new one.
No ranting! I'm actually pleased, they were really nice. Saw the reg who said my summary and PF chart was really helpful, did the usual (what a surprise, I don't wheeze). She went to fill the cons in on what was happening but it turns out the cons already knows my case, has read all the notes and spoken to my GP.
Basically, they said they will do a few basic tests again but because I've already had loads of tests at the other places they don't think there is any point in keeping me at St Mary's and running everything again, as they reckon they're not going to be able to find out what it is there. So referring me to Dr Menzies-Gow's 'weird asthma' clinic at RBH; they will also look into this odd dizziness problem I've been having as well.
So bloods today (took ages!) and basic spirometry, next time another echo and more lung function plus possibly an ECG. Next clinic in 3 weeks, was meant to be 2 but they had to squeeze me in.
The outcome is not all that different from before but the difference in attitude is huge! The reg did say my PF is not typical of asthma and it may not be that but instead of saying 'well, we can't find anything so there isn't anything there, go away', they said 'you do have a problem, I can see it's bothering you and it needs to be sorted but we can't do it here.'
All in all I am pretty happy. If only more doctors could admit they don't know and need a more expert opinion!