Went to GP today as AUK nurses suggested to persuade her to try me on a course of pred. She had actually mentioned it as another of her patients is in same situation as me and had been tried on it, but was a bit reluctant to prescribe it without diagnosis. Gave in though when I pointed out I'm no nearer to a diagnosis now than I was months ago and I need something because this is beginning to run my life; she also agreed with AUK nurses that it would be diagnostically helpful to see if it worked, and with me that if the cons was just going to try me on it then I might as well try it now before I go and then can save time.
So on 2-week tapering course starting at 40mg. Happy - kind of, that something is being done. But also a bit worried - if it doesn't work, square 1. If it does work, the leaflet was freaking me out - with all the combined experience on here, does anyone know what would happen if it DOES work? Would they keep me on it or decide to try an inhaled steroid I haven't yet tried? Obv would be very happy if it works but would prefer not to be on it long term if I could have something else instead.
Also a bit down - my GP is lovely and generally good but I do always feel a bit depressed after seeing her because she says things like 'well, you've had every investigation going' and 'to be honest I can't see the consultant is going to do anything at your next appointment'. I can't believe I'm at that stage already, or will be if the pred doesn't work! Surely there must be something else they can test for/try?
Oops, sorry for another long rant/ramble from me - know I've been doing it a lot recently but nowhere else I can do it and the whole thing is getting me down even though I do tell myself it could be a lot worse.