update

still in hospital doing not so good

nasty infection feeling scared

i might die this time

doctors nurses my parents

talking about the transplant list and me

how soon can i get new lungs

i have gone through many hard times

but i dont want some other kid to die because

they did not get new lungs because of me

[yaf_user681_32991]

(((HUGS)))

you show so much maturity in your last sentence sweetie. i'm sure you are scared, i would be. remember we are here to keep you entertained.

lots more hugs!

Geina x

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Oh sweetie, I'm sorry that you're not doing so well.

Transplant is a big thing to get your head around (my dad was on a transplant list, so I know a little bit about it). You're very generous to say that you don't want to prevent someone else from having a shot at a new life with new lungs, but you are worth it too. Think of all the people who love you and the things that you could achieve in your lifetime! That's not to say that you have to agree to go onto the transplant list, but think it over carefully and talk to people about it. Do they have a psychologist in your CF unit? If so, they would be an excellent person with whom to discuss all of this.

Sending hugs and hope that you feel better soon.

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Hi CF, I'm so sorry to see you're not doing so well. Do you know the Cystic Fibrosis Trust have a website and a forum, one for adults and another for teenagers. I think it would help you to go on there as they have the same condition as you and there are people in the same osition awaiting transplant and they post about there transplant assessments. Those that have had transplants give advice to those waiting also. It often helps to talk to people who are going through the same thing as you. Take care and keep fighting.