I apologise in advance for the moan but really do not know what to think anymore.
Over the past few months my son has had a bit of a rough time with his ?Asthma. He caught a chest infection just before christmas and has been really up and down since (more down than up). He has had 5 admissions since Jan but does not conform to our local consultants idea of Asthma and there have been a number of suggestions his symptoms are psycological either through stress or my concerns rubbing off on him.
The consultant feels his symptoms are over-exadurated or percived to be more serious than they clinically are. The main problem seems to be that Jay rarely wheezes and when he does it is only very mild. His sats are usually ok, no lower than 95% and apart from a prolonged expiritory phase all the other symptoms can be induced. ie, rapid breathing, reduced peak flow, high pulse rate (put down to overuse of Ventolin.) At our last o/p appointment Jay had lung function of 55% but after the quickest chest examination ever (took 4 short breaths to complete) I was told wonderful, everything is fine and his chest is pristine clear.
We have a good relationship with the reg and sho's at our local who seem to accept Jay doesn't wheeze and have taken to looking for other signs such as inablity to talk in sentances, chest pain, accessory use and response to salbutamol. They ask Jay how he feels and seem to trust his judgement. The problem is the consultant. He is extremely dismissive and at times makes sarcastic comments. He discharged Jayden a few weeks ago after an overnight admission but Jayden began struggling again that evening and was readmitted. He passed me in the corridor the following day and said 'so whats going on now?'. He obviously didn't want a reply as he continued walking by.
I have only ever made a fuss once when an A&E doctor refused to get us a referal to peads as Jay was no longer wheezing after 2 nebs, despite his pf still being less than 50% and a drop in sats from 96% - 94%. I got no where with my complaining and was told I was quite at liberty to bring Jay back if I felt he needed to be seen again. We were back 10 hours later and admitted to HDU. I am a calm parent and Jayden is often calm and usually asks to go home when they want to admit him as he doesn't want to stay. Does this sound like a psycologic problem?
The only things keeping me sane are the fact RBH say he definately has asthma and I have a very supportive community nurse. But I am now at the stage I don't want to take him to our local unless he is really struggling as I don't like the insinuations. Earlier this week I rang his asthma nurse as he was using alot of ventolin and asked her what to do as I didn't want to use his emergency card. I am getting embarassed going there all the time - so she rang them and said she was referring him. It's a rediculous situation I know but I have really taken some of the comments to heart. As it was jay wasn't very well and had a 25% pf when we got to hospital, breathing rate of 40 and was using accessory muscles. Back to back nebs brought him to just over 50% and he was admitted on 2 hourly nebs.
I am starting to worry my judgement is clouded because of all this and I am no longer confident in assessing when to seek help. I don't want to leave it until he is really struggling but am worried I will be viewed as a paniky parent by going too soon.
Just needed to get this of my chest so to speak - don't need any replies really just somewhere to vent my frustration.