Recommend a nebuliser please

Hi all,

I am currently on Seretide 250, ventolin, pred etc, and am currently getting worse. My gp has said I need a buy a nebuliser and the hospital have sent me a couple of leaflets, but I was just wanted to ask the experts and was wondering if you could tell me about your experiences with home nebulisers and which make/models are best??

I am thinking about either Porta-med Ventistream or an AC 2000.

Seeing my gp again on Tuesday to discuss it further, and get set rules for its use. (I just read on another post that some of you dont get a wheeze in an attack, and I am really pleased to know I am not the only one!! Times I have been told I'm ok because I havent a wheeze is unreal. My breathing gets silent and shallow with tiny little breaths).

Kind Regards!!

11 Replies

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  • Hey laaly,

    I know the feeling of being told you dont have asthma because you are not wheezing!! In fact on Friday i was sent home from a & e, whilst having an attack because i wasn’t wheezing (even though my oxygen sats where 85%) only to end up back in hospital (in intensive care) on Tuesday. Now if they had treated my asthma well the first time instead of ignoring it i may have had a chance of avoiding intensive care!! My chest also goes silent n my local hospital is great when this happens, they know that silent chest = resus. Anyway back to nebs it. It depends on what you are going to use it for (e.g. just Ventolin or steroids?), how often (every 4 hours or just some of the time?) and does it need to be portable? At the moment I have an omron NE- U22 and i find it fantastic!! It is tiny, silent and portable. I use it to nebulise Ventolin every 4 hours and atrovent every 6 hours every day and haven’t ever had a problem with it. I also have 2 old home nebs that I can use as backups. It really comes down to personal preference.

    Hope this was some help.

  • Hi we have a parimed unilight nebuliser for my 8 year old son, had it for nearly 5 years now and it's been used loads.Again Matty has silent asthma as I call it, he has never wheezed and has has asthma since he was six months old.We now get doctors to look at his chest and breathing instead of listening.

    As the pari is portable and has it's own battery as well as mains and car adapter, we have used it everywhere including the train when a thunder storm broke out after a trip to the beach. We have used it in Spain and were allowed to take it on the plane when we have travelled.It goes with us everywhere. It means Matty has a normal life,he is a fantasic runner so the neb comes to the track with him. Matty is on seretide 250 and steroids too.I would say you have to be careful with the nebuliser as you can get too reliant on it when medical help is definitely needed, BUT saying that it's saved Matty's life more than once after being sent back from a + e as his chest is ""lovely and clear""!!If you feel at all unsure PLEASE get medical help.

    Good luck with getting your nebuliser and hope you fell better soon.

    Rattles

  • Hello Laaly sorry to hear you are needing a home nebuliser.

    I have a ""Porta-neb"" and a ""Freeway-elite"" (the free way is very light) both are my saviours, and I have not had any problems with either.

    I have been using this Porta neb for at least seven years getting it serviced annually as it is in daily use (at least three times daily) and although it is classified as portable I found it very heavy when having one of my ""Bad"" asthma days !

    The Freeway-elite only weighs one pound and has a battery/charger which makes it totally portable (the battery lasts up to three uses) this little nebuliser also comes with adaptors which can connect it to the cigarette lighter in the car and shaver sockets as well as mains electrics. ( I carry it in my handbag when I manage to venture out !)

    and although the spare parts and nebulisers can be expensive I have never encountered any problems with either and are my reliable companions in my daily life (see ""A poem"" thread... ""Ode to my nebs"" and ""The one that gives me life"" to mention just two!)

    Good luck and keep well... am sure you will get loads more suggestions... the most important thing is to find what suits YOUR needs best, if in doubt ask your gp's which ones they use! (most clinics have one there for emergency use!)

    Hugs from the Orkney Isles

    Susy

  • recommend a nebuliser

    Hi,

    This is the first time that I have done an entry on a blog so bear with me. I have had a freedom freeway portable nebuliser for a few years and it has been marvellous. However last year I invested in a new product called ""Aeroneb- Go"". This is made by aerogen(ireland)Ltd, galway business park, dangan Ireland. It is silent as it has a micro chip which turns the liquid into a fine mist. No more embarrassing noise to explain away. it weighs a couple of ounces and outside runs of 3 AA batteries house in a console which fits in the palm of the hand. It also runs of main electricity. Cost £159 approx direct from a company called Respironics UK but could possibly get cheaper. I feel a lot happier going out and about now.

    Aso now how people feel about their asthma not being understood. I lost my job as a result of the condition. At presents in a month my PF fluctuates between 300 at best / 100 worst. The bad times can last 2 weeks at a time etc etc. Was sent for a medical by the Jobcentre and their medical contractors passed me a fit for work - when i queried the fact that asthma was not even mentioned on their report theri reponse was that it was an irrelavnt transitory issue and the the variations in breating pattern were inconsequential variations around a norm! It took 7 months to get everything sorted out. the Tribunal chairman apologised!!

  • hiya

    sorry to hear you need a home neb. i take ventolin and atrovent nebs 4 times a day and bought an actineb from resperonics - its fab but not portable so ive recently bought a neb from maplin called a poly green. Cash was an issue with me as the hospital wouldnt fund it even though my consultant and GP thought it wqs necessary so they are both under 60 pounds. The poly green is not siutable for use with oxygen coz of the way it works - its an ionisation neb it is however silent portable and very light. The compressor type nebs like the actineb are similar to the work horses they use in hospital but they are very noisy unless you spend a lot on them and not very portable. The two i have are great i use them both everyday and both together cost me less than one of the more expensive compressor types...

    its worth noting though that mine can only be used for ventolin and atrovent and cannot be used for steroids or antibiotics etc.. hope this helps take care and feel free to PM me if you want more info... KitKat Xx

  • I have used home nebulisers for twenty years. Currently have a microair which can now be purchased on line for about £80. This is useful for sticking in your handbag and taking out and about. They say that it can be used for everyday usage but expereince tells me that this is not rally the case.

    Compressor nebulusiers like the paraboy and freeway are best for everyday use. My last two compressor nebulisers have been freeway lites. I have never had a problem with them, they are real workhorses. In fact my old one which I keep as a spare, works as well as the day I bought it 10 years ago. I like the free way lite because, it works on battery pack, off the car adaptor and mains. There are cheaper ones available, but as I have also found out sometimes cheap doesn't always work.

  • Hello and welcome to the boards. I have a much loved Omron Microair, its ace, its very light and easy to use but more importantly its very quiet and has never ever let me down. I use it every day. My first neb was a Medix and this has to be plugged into a socket and is very noisy, so it is redundant now. My next neb was terrible i got it from Maplins - its only plus was its price it was very cheap. It resulted in quite a few trips to A&E as it kept letting me down - it would conk out for no reason! Very frightening when not near a socket for my back up neb to work. Maplins apologised and i tried 2 replacement models but they proved to be unreliable and although i got a refund for the actual neb i didn't for about £40 of accessories(adaptor, charger etc)

    I love my Omron Microair, it has never let me down is in an unobtrusive blue little bag gets heavy use and doesn't need medicine cups like the sony green. It is a little fiddly to clean but well worth this slight inconvienience. Shop around because the price for the same neb can vary significantly and whatever you do avoid the Sony Green! Good luck and happy nebbing! Lois

  • Hello and welcome to the boards. I have a much loved Omron Microair, its ace, its very light and easy to use but more importantly its very quiet and has never ever let me down. I use it every day. My first neb was a Medix and this has to be plugged into a socket and is very noisy, so it is redundant now. My next neb was terrible i got it from Maplins - its only plus was its price it was very cheap. It resulted in quite a few trips to A&E as it kept letting me down - it would conk out for no reason! Very frightening when not near a socket for my back up neb to work. Maplins apologised and i tried 2 replacement models but they proved to be unreliable and although i got a refund for the actual neb i didn't for about £40 of accessories(adaptor, charger etc)

    I love my Omron Microair, it has never let me down is in an unobtrusive blue little bag gets heavy use and doesn't need medicine cups like the sony green. It is a little fiddly to clean but well worth this slight inconvienience. Shop around because the price for the same neb can vary significantly and whatever you do avoid the Sony Green! Good luck and happy nebbing! Lois

  • freeway elite nebuliser

    Hi all

    Came across this thread when looking for some info on portable compressor nebulisers. I currently have a mirco air omron which had about 4years and used it just about everyday. It has been great esp being so small, light and silent but having replaced the mesh filter a couple times and the drug container i feel it is now time to change it as this one is becoming less and less reliably and i fear one day when needed it urgently it will die on me!

    Really do like my compressor nebs at home, i have a profile neb and a medix one for downstairs so looking to get a compressor one that is portable and will fit in my bag.

    Been looking at the freeway elite and obviously bigger than the omron but expect that for a compressor but wanted to know if anyone has one of these what are your experiences with it? How noisy are they and does the battery last a while even after months of recharging?

    Grateful for any thoughts on any other portable compressor nebs as want to get the right one before spend a lot of money.

    Thanks

    Take care all

    Keep warm

    Sarah

  • bit of a side question really but ppl keep saying salbutmol every 4 hours and atrovent every 6 now while i bn in hospital i am just given both atrovent and salbutmol at same time four times a day. roughly 8am, 1pm, 5pm, 9pm or as and wen they get round with meds. this is how i bn told to do it is this wrong?

  • sarah66 re: Freeway Elite ...

    I have been using for quite a while now as a second more mobile Nebuliser... Please see earlier posting in this thread.

    RE: Noise level... it is definitely quieter than my Porta Neb and the manufactures recommend that is not used for longer than half and hour at any one time ... more than ample time to nebulise properly.

    The battery/charger continues to run very effectively specially if every so often you allow it to run out completely and start again as if new!

    Good Luck and keep well

    Susy

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