I am new to this but really need some help. I have been on Xolair for 2 years now, with a lot of success and I am getting married this year and we are planning a Family as soon as we are married. There is no data on the effects of xolair during pregnancy for the unborn baby and I have had conflicting information, A xolair rep advised that treatment should be stopped during pregnancy and there are observational registry services for xolair patients during pregnancy....this makes me nervous. The other advise is from my consultant and he suggests that I stay on the treatment because the risk of me coming off the treatment far out ways the risks to the unborn baby.....if there is no evidence how can he be sure? The FDA have catergorised Xolair as band B, no nown problems in pregnancy but no Human testing complete. My partner and I have trawled the internet and have come up with very little, we thought that with Xolair being in trials since 2003 and in circulation in the UK for the past 3 years there would be some data on it, good or bad but have found nothing. I dont like the thought of coming off the xolair as I am the most stable I have been since a child and I am still on all other treatments but my hospital admissions have decreased significantly and my quality of life has improved.
Has anyone taken Xolair whilst pregnant or know of anyone that has??? We would be very interested to hear from you and hear of your experiences.