I mentioned earlier this year that I was hoping to get on a trial of inhaled mannitol (aka Bronchitol) at RBH. The aim of the drug is to thin the sticky mucus in the lungs and allow it to be coughed up more easily, leading to clearer airways and fewer infections.
Well I've been on it for 6 months now. It's a double-blind trial but I must have the proper drug because the effect is amazing! Fewer infections, increased lung function, and my lungs are so much clearer. Now I know how it feels to breathe normally. I can do my physio in about 15 mins whereas beforehand it took over an hour, and I've gone from continual bouts of nighttime coughing to hardly coughing at all, so I feel wonderful.
They are still recruiting for the trial so if anyone has bronchiectasis and is interested in getting on it, I can give you the email address for the research team. I'm so glad I found out about it.