So, I've heard back from Southampton today and the test results are back. They are recommending a continous sub cut infusion of terbutaline but.......
my GP will have to provide the pump and they have spoken to him but he's not sure if they will be able to provide one.
Does anyone have any handy hints on:
1) Anywhere I can use to try and get funding
2) Experience of continuous infusion and how you get on with it/any issues to be aware of
Thanks!
Feejay
That's great news fee .. I hope the pump gives u stability over ur asthma ... Only thing I can say is the tubing will catch on anything u walk past and nite time activities can be fun ....
Hello Fee,
I don't have personal experience but there is several posts on here, sorry if you have already searched.
Will the hospital not help with at least setup or is it down to something like being out of PCT region for funding?
Medical: Any tips on getting funding from PCT for s/c pump Jun-Aug 2011
asthma.org.uk/applications/...
Medical: Inconsistant Consultant views for treatments Aug 11 asthma.org.uk/applications/...
General forum: Subcut and nursing Jan 11
asthma.org.uk/applications/...
Medical: New to subcut - any advice Oct 10
U gotta keep an eye on ur insertion site ... If having problems say to ur respiratory team so u can try different sets. I have. A chrono pump and love it. Small enuff to fit in a pocket . Thanks to my pump I can get out more and do a bit more walking. U gotta b realistic about the improvement I wanted to ride a bike as soon as I got home ha ha ha.... The bike waiting til nxt year .... Tho I got to go abroad this year for a holiday .....
U gotta keep an eye on ur insertion site ... If having problems say to ur respiratory team so u can try different sets. I have. A chrono pump and love it. Small enuff to fit in a pocket . Thanks to my pump I can get out more and do a bit more walking. U gotta b realistic about the improvement I wanted to ride a bike as soon as I got home ha ha ha.... The bike waiting til nxt year .... Tho I got to go abroad this year for a holiday .....
Any news on that pump yet ....
My GP doesn't have one to lend..........
not sure what will happen now. Need to talk to Southampton, maybe they will do a trial - then I can put together a case for funding to the PCT if it works.
Hope the Sub cut pump helps you Fee and gives you a lot more better days
with your asthma xxxx
Fee, would say ask Katina, I know she uses one and has lots experience with sub cut pumps and the like.
Hello,
I have always had my pump (A graseby MS26 syringe driver) on loan from initially District nurses , and now from the medical equipment library at my local hosp. Can your local provide you with a loan one to ensure it works for you. It doesn't always work for everyone.
Ask for Sof-sets or Sillouette sof-set infusion sets (needle is soft like a venflon and has integral tubing, etc) as these are much better than solid butterfly needles (if they are still used?)
Be confident with the set up, write a little crib sheet - mine was written on the back of a hospital catering menu card! Ensure you know who is supplying the sets, syringes, needles, batteries if you have a McKinley which eats batteries, etc.
Ensure your local chemist can get the ampoules in, order well in advance and always keep an emergency stash!
Rotate your sites, eg 3-4 days, though I leave longer if they look OK but that is my personal way and I am aware of how my own skin behaves.
You may get shakes and cramps esp with bricanyl, I use s/c ventolin.
If you do a search on the message boards, there are quite a few threads on s/c. PM me if you like......
Kate
Chest infection still! What next?
steroid inhalers and oral thrush 
recently diagnosed asthma
nervous about montelukast 
Seretide makes my cough worse…I think!
