i have just returned home from being ventilated agian, the first time in a year and it has really thrown me.
i had forgotton how rough i feel, every bit of me hurts, i have not resorted to the pain killers but i am just fragile, also the mental aspect is hard.
i have had the really bad attacks when you think this is it, but get pulled round, and i think it must be easier to accept and move on from , than this one, i was only tubed for 6 hours and i was soo much better after, that i was able to come home the next day, but now i feel quite low.
i am sure tomorrow i will feel better,
does anyone feel like this post ventilation?