I'm hoping someone help can help me understand - I'm feeling pretty scared right now.
I've been on long-term steroids (Pred) for years. Things are finally getting better with the Omalizumab so I've been weaning the Pred. Got down to 5mg from 40mg, my consultant wanted me to have a Synacthen test to check everything was okay to come off the Pred, but made out it was just a formality.
I got the results of my synacthen test today - they show my adrenals didn't respond at all, i.e. no function. The endocrinologist went on about adrenal failure and how it could be life-threatening, but she spoke really bad English and used lots of long medical words and I didn't understand much at all of what she was saying, particularly as I found it difficult to take anything in after she scared me with talking about it being 'life-threatening'.
She said I need to take Hydrocortisone but I didn't understand the treatment plan.
I'm seeing my GP next week and I'm going to see if she can help me understand then, but if anyone can help me understand and feel a little less scared now, I'd appreciate it.
What does this diagnosis mean?
Is it reversible?
What is the treatment?
Does Hydrocortisone have the same side effects as Pred, i.e. weight gain, brittle bones, etc.?
Does Hydrocortisone help the asthma or will I still need to take Pred when the asthma deteriorates? Can I take then together?
Sorry about all the questions, I'm feeling pretty confused and scared.