Hi all,
I hardly ever post on here but I do read here from time to time and have always had great experiences and help in the past.
I am a brittle asthmatic - diagnosed feb 2000 am under the brompton under prof durham and debbie and under my local hospital - broomfield where i'm currently in reidence now.
I have been up and down over the last 10 years of being in itu to being able to leave a relitively normal life - so as you can see i vary so much!
Since having my son in may 2008 at 32 weeks after a very rough pregnancy spending the last 5 weeks of it in ITU I haven't been able to get back to what I feel is full health and i'm struggling mentally and physically with this.
My current medication is
pred 40mg
uniphylin 400mg BD
Singulair 10mg
Zirtec 10mg
Alendronic Acid 70mg
adcal d3
Azithromycin 250mg
Atrovent nebs 500mcg QDS
Ventolin Nebs - as and when - pretty much 2 hourly at the moment
am currently on 40% o2 (10lpm) and am saturating between 85-96%)
Am also currently on IV aminophylinne so not on the uniphyline.
Im currently really struggling I have 2 young children at home but am not physically well enough to get myself washed and dressed let alone look after them - take this morning for example I got out of bed on o2 with the help of a nurse and had a wash with a bowl and changed my pjs all with help of nurse which ended in my sats plumeting and 4 nebs to get over it.
Im also really down as I just can't handle this anymore - no one seems to have any answers my consultant is currently off as it the other consultant I trust, so no one seams to know what to do. I miss my children so much i'm exhausted as Im nebbing pretty much 2 hourly so not sleeping
I know some of you out there are drs and also there are a few brittles - what would you do? What other options do I have - they have mentioned sub - cut which I have used in the past. Are there any other options or do I just have to sit and bare it and get on with it. Im sorry to post such a down post but i really dont know how much more of this i can handle.
THanks in advance for any help