Hi all I have brittle asthma and been steroid dependant for 10 yrs.
I've been really struggling with steroid induced muscle weakness since a bad admission in Jan, have been diagnosed with this b4 but usually only mild compared to how been this time. Still really struglling to walk as legs, esp quads very weak. Been having wkly home physio and walking with crutches for support to actually manage to walk but anywhere further than a short stroll I'm needing chair as nt only am I weak to walk but chest starts to complain, physio said its cos body demanding so much oxy to walk wit bein so weak.
Just wondered if other ppl out there had similar probs and how long does it take for things to improve?
Like I said I'm having community physio visits at the mo and she has been fantastic support and for my breathing too but apparently only allowed 6 sessions and will have had 9 when she next comes so said it will be our last even thou she said I'm far from ready for her to stop coming. How can they take away a service that providing much needed support if still need it?
Finding it all very frustrating and slow recovery nt helped by nt being able to get pred below 27.5.