I am still struggling with this reduction in steroid thing. Been down at 30mg for around a week now but every morning I have dreadful trouble awaking 4:30am - 5am with PF of 50 to 80 when my best is 450 to 500 (evening only). 2 x nebs and I usually pop back up, with once being an a & e visit and some IV hydroquartozone given on arrival with more nebs. Has any one researched or is there a clinical reason as to exactly why these pf's dip so dramatically early morning. With it I have the Shortness of Breath, resp rate increased & of course heart rate increased all until nebs kick in. I would love to know if this is something to do with the way I breath when I sleep, or perhaps a trigger in my room. I have bought new pillows, damp dusted again and run a dehumidifier/ionizer in my room. Has my adrenal gland given up working? is it a hormone 'dump'? Is it the way my lungs work when I sleep? I have googled a few sites but surely there is something more I can do. Consultant has asked me to stay on 30mg pred & usual maintenance stuff and daily nebs for another few weeks till I see consultant again.
Any suggestions or a point to a good website for research would be so so so welcomed.