Hope everyone is doing ok.
I have an older sister (she's 24) and has severe Autism, she can't talk read or write. Because of this we have to make all decisions for her medically, own her house on her behalf, her car etc. When my parents can no longer make decisions for her (due to their health or them no longer being around) I will be (at least in part) responsible for making the decisions, along with some or maybe all of my other siblings (there are six of us in total). I thought nothing more of this, and one day me and my siblings will have to make these decisions, by nominting one main next of kin or by all collectivey being as responsible, whatever we decide when the time comes because obviously my parents won't be able to do it forever.
She had a really really bad epileptic fit today, the support worker who was with her was hysterical when she spoke to my mum. My sister was going blue, frothing I dread to think what her blood pressure was, she looked like she was ""stiff"" according to the support worker. She thought she was going to lose her. Anyway she was rushed to hospital and it's all being dealt with and brought under control. Things are going to be touch and go for a while. But all I keep thinking is, what if my mum hadnt have been able to asnwer, and they'd have rang me. I don't regret my decision to be a contact at all she's my sister and I'd do anything for her, but I guess I'm just scared by the reality of what that brings I suppose. I guess I just wonder how other people who are faced with such decisions and risk such episodes happening cope. I thought there could be people on here who can relate to that kind of thing, despite the condition being different? Anyone know how it feels? and what helps you cope?