What comes next?

I am feeling very anxious right now. My 4 year old daughter had a bronchial lavage and a bronchoscopy this past week. This is her second one. According to our consultant's at Addenbrookes and Prof Bush from the RBH, she is on the maximum doses of all of her medications and she is nowhere near under control. She is on 10mg ceterizine, 4mg singulair, 15mg lansoperazole, azithromycin (three times per week for the anti-inflammatory properties), Seretide 250 (4 puffs a day), salbutamol nebs and inhaler. She also takes 40mg of steroids very regularly.

What comes next for a little one? Can they do subcutaneous meds for a little one? She is still needing her blue inhaler every four hours, around the clock. She is desat'ing regularly. I am so lost as to what could possibly come next. Xolair has been ruled out due to NHS guidelines. She is admitted to hospital at least every 4-6 weeks for several days at a time. Any guidance would be great.

2 Replies

  • Twin mummy I am sorry to read about your daughter. My son isn't as bad as your daughter but we are having our ups and downs again due the weather with his asthma.

    I'm not sure what else there is out there for little ones but they might have to go down the route of subcutaneous meds. Hope they can help your daughter very soon and I also wanted to offer you some virtual hugs

  • What you said about doctor saying she's on 'maximum treatment' rang a bell, my son's asthma consultant kept saying that and when we saw Ear Nose and Throat Consultant for George's rhinitis, he said he couldnt help as George was on 'maximum treatment' already. Then I read about a newish treatment for rhinitis on here and asked GP if we could try it. He agreed, and to our delight it has really helped George.

    They are coming up with new meds all the time so dont give up hope. When I was in hospital as a child (60s) they only had oxygen and Aminophylline to help me. ** Then Intal was discovered (I was one of the first guinea pigs) and my life changed and I was able to go to school properly for the first time, and go home. I'm constantly surprised at the way things have moved forward.

    **edit. I should add there was also a funny little puffer spray (a fore-runner of the present reliever) in the 1960s, but they only gave it to children very sparingly (maybe adults too) as it was believed to affect the heart.

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