My son is 5yrs old and has been in and out of hospital most of his life. Following a bad attack when he was 2, needing resucitation and time in intensive care, he was put on slo phylin as well as extensive inhalers, etc. His asthma is still not controlled despite all this and he regularly has courses of pred and time in hosp despite us having a nebuliser at home aswell.
He has recently had his IgE levels tested and they were found to be high. He has been referred to another consultant at birmingham children's hospital and the suggestion is they try Omalizumab. Everything I read about this drug says not for under 12's.
Does anyone have experience of it? I obviously want to do everything to help my son be well but am concerned that not much is known about this drug for the under 12's.
Any thoughts would be gratefuly recieved thankyou