I have 4 year old twins and one of them has severe/difficult/brittle (every hospital has different names for it) asthma. She was diagnosed at 7 months old and she is unfortunately getting worse. She was admitted 14 times last year and that doesn't even begin to detail the number of times we have dealt with her medical issues at home with steroids and nebs. She is on seretide, salbutamol, ceterzine, singulair, azithromycin, pred, lansoperazole and has an epi-pen for her attacks as well. She was on slo-phyllin but the doctors discontinued it when it no longer worked for her. She started the azithromycin in later January. She only had a mild attack in February and then a big attack requiring admission with O2 in March. No problems in April and a huge attack requiring admission in mid May. Two admissions in June and was just discharged yesterday from another attack this month.
Consultant for difficult/severe asthma says there is nothing more medication wise we can do for her. She has tried everything and isn't a candidate for Xolair due to her age and low IGe levels (only 100). I don't know what to do anymore and I feel so helpless. My daughter is getting worse and our consultant called it a ""bad run of luck."" Ticked me off! The asthma nurse won't return my calls and our local hospital doesn't understand severe asthma in the slightest. They discharged her when I feel she was still too fragile.
I have asked my GP to refer me onto another hospital for a second opinion as I feel my daughter is getting shafted. The consultant vaguely accused me of enjoying my daughter being sick because I had researched different drug therapies to try. Research is what I used to do for a living before I had to quit to stay home and take care of her. I just want all of the information. I need it as our local hospital screws up so much.
Can anyone help? I don't know what to do and feel as though I am banging my head against a wall. My daughter is getting worse and the doctors just don't seem to care.