Hi everyone and hope the new year is getting off to a good start!
I am having probs with my son who is 12 and his consultant (who is much older than 12).
Jay has had a tight chest with low peak flows since cathing some viral thing just before christmas. We spent most of the holidays back and forth from local only to be told he is ok as he is not wheezing and sats are ok. Had appointment at Brompton on Tuesday and Jay had lung function of 37% with minimal wheeze and sats of 96%. RBH arranged admission through local as they had no beds. So far so good, I am thinking we will finally get to the bottom of things. BUT OH NO - LOCAL HAVE DIFFERENT IDEAS!!!!
Reccomendation from RBH was admit for hourly nebs with possibility of needing IV's. Local translated this to 'give 30 puffs of Ventolin and send home'. Luckily Jays community nurse came to hospital while we were still there and told them to admit him.
They continued treating with 10 puffs of Salbutamol 3 hourly despite low peak flows and Jay complaining his chest was sore and he was having difficulty breathing. Eventually agreed to 2 hourly Ventolin but would not give nebs. Next day stretched to 3 hourly again but Jay feeling much worse and constantly complaining. Shift change brought a different perspective to situation and reg set up IV Salbutamol and 2 hourly nebs for 5 hours followed by hourly nebs for 4 hours. PF rose from 150 - 240 and Jay feeling much better. Day shift back on so put back on 2 hourly 10 puffs of Ventolin! To cut a long story short - 2 days later, now on 4 hourly 10 puffs, PF still on 150 (Best 320). Consultant saw Jay today and decided he is not having an exacerbation but has got into the habit of shallow breathing from having a 'bit of a dip' over the past few weeks. He is being discharged tomorrow after physios have taught him how to breath properly again.
Both myself and community nurse are fuming as thet did not follow recommendation from RBH until next day and then reduced meds too quickly. The nebs/IV was the only thing to increase PF and as soon as they stopped this his PF dropped back down to below 50% again.
Does this sound like Asthma or a breathing technique problem? I don't want to bring him home feeling ill but don't want to leave him there when they are doing nothing for him?