Hello there !!: Hi, My daughter Emily... - Asthma Community ...

Asthma Community Forum

21,539 members24,418 posts

Hello there !!

yaf_user681_26677 profile image
2 Replies

Hi, My daughter Emily is 11 and has very brittle asthma. She has had numerous admissions to hospital. Our consultant has just referred her to Bristol to have tests etc. They are planning a Bronchoscopy at the mo, plus other things, all a little scary !! Bless her she is coping so well. Her asthma attacks come on with very little warning and we live 25 minutes away from the hospital.

We are at present stuck in the no go area for a neb !! One consultant says yes whilst another says no.

Emily has been on pred since January so almost certainly adrenally suppressed, awaiting synacthen test result. Emotionally she is very low and had enough of being asthmatic.We have both cried more times than i can count. She goes to secondary school in September, which should hopefully be ok as our respiratory nurse, Helen is fab and liasing with the school nurse.

All in all it has been a rough 12 months and it would be great to hear from anyone that knows what it feels like to have a poorly child or to be one !!

Best Wishes

Cathy and Emily xx

Written by
yaf_user681_26677 profile image
yaf_user681_26677
To view profiles and participate in discussions please or .
Read more about...
2 Replies

hello there - im sorry for taking ages to reply, havent been online much!

my son is 3 and sounds very much like your daughter - he had a bronchoscopy in january and they found it very useful (he still has ""just asthma"" but at least they know it isnt something else for definate now!) he was unwell for a couple of weeks after but thats quite unusual( he had an infection and the camera irritated him!) it IS quite normal to have a fever in the first 24 hours after a bronchascopy so dont panic if that does happen.

Michael is also on steroids - has been for about a year and he is at the moment getting over the chickenpox. they hit him quite bad but we managed to keep him at home with zovirax antibiotics and 4 hourly nebs. we got our neb about a year ago, and it was our cons who suggested it - some of the other docs didnt agree bt they had no say.

with regards to her going to secondary school - you should be able to meet up with the staff whol will be her main ""carers"" to discuss your needs - try to get a plan which is as similar as possible to the one you currently use.

we are also lucky with our respiratory nurse (also called helen) who has visited nursery a couple of times to show them proper inhalor technique and to show videos dealing with anaphylactic shock etc - shes great!!!

if you ever need a chat, just message me and ill reply. i know how it feels to have an unwell child and believe me its easier to cope with when you have someone who knows rather than someone who doesnt. if you know what i mean!!!

Mod message

At some point us moderators might find this message board gets an upgrade and we can do all of the ""housekeeping"" stuff that we used to be able to do on the old board, such as merging threads (which would enable me to move Kristen's post to the other version of this thread). Ho hum...

Until then, you'll have to make do with me popping up every now-and-then and asking you to respond to this thread by posing in the OTHER ""Hello there !!"" thread in this forum, as that now has more replies than this one. Cheers, folks!

You may also like...

repeated upper respiratory viral infections

of infections and that her asthma might make her more susceptible. Is her asthma enough to cause...

Amazing same day GP service!

asked who I wanted to see, so I put my GP and asthma nurse as my preferred options. My GP phoned me...

PLEASE HELP - constant coughing and dry preventers not helping at all

‘disrupted’ I have been to the asthma nurse and respiratory consultant. The consultant  moved me...

Stronger than steroids

had nasty asthma attacks for four days now, as the weather has got cold again. The asthma nurse...

Bruising from high dose steroid inhaler

a severe asthma clinic at my local hospital (GPs can do this). The possible severe asthma I may...