know i should know this....but just need some help!!

After having the longest time (8weeks) without needing Pred and hospital in her life, Maddie has now had a cold the last couple of days.

We thought that with her new meds we'd get through it ok. However in the night, quite abruptly, we needed to call an ambulance due to her breathing problems. She wasn't wheezy but was short of breath, coughin and vommiting mucous and couldn't talk due to lack of breath. They were brill and settled her.

Today has been not great with her coughing continuously, short of breath, difficulty speaking and eating etc. So I took her to our surgery this pm and ended up with a locum who saw her. He listened to her chest and sd she was clear and fine!

Well I know her....and she's NOT! She's coughing A LOT. She can't walk far, is refusing food and her breathing sounds tight although still no wheeze.

What do I do? Do I do as he says and 'see how we go tonight'?

She's always wheezed in the past so I'm not used to this presentation!

Shall I just start her on her Pred?

Arghhhh! Being a parent to a child with Asthma is sooo v hard! :-(

14 Replies

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  • Emily, I know exactly what you mean (on all fronts). We have had this happen with our son - GP who doesnt know him said his chest is clear when as a parent you KNOW something is wrong. I would be inclined to ring out of hours doctors' service and say your little girl is ill and can she be checked? Even if her chest was clear, things can turn quite quickly with chest infections/asthma. I always have a stock of preds, but am reluctant to start son on them unless it's absolutely necessary (like Maddie, he's had so many courses over the years). The fact that Maddie has gone without them for 8 weeks is encouraging.

    It always happens Friday evening or night, doesnt it? But mother's instincts are generally right, so go with your instinct. Good luck and let us know how u get on.

  • hi emily

    that indeed is ecouraging that she has managed 8 weeks so far without pred :)

    i agree with angie maternal instinct is strong... if you think that she is in need of pred to help, then start it. especially as she is not quite right, and you know that aint normal maddie, regardless of if she is wheezy or not doesnt matter. like you say she desnt always wheeze, like many asthmatics....

    good luck and let us know :)

    x x x

  • Emily, it's very hard to deal with a sick child when your doctor doesn't believe you. You need to keep going back until someone listens.

    Good luck

    xx

  • Sorry, that looks a bit abrupt. I could go into the long story of why I think you need to keep nagging, but it would probably bore you to tears and you've got enough on your plate as it is.

    Just remember that you know your child a lot better than the doctor does, and you pick up on all sorts of signals - body language, speach patterns, even the way the breath smells all give you clues that the doctor will never get in a million years.

    Keep plugging away, and good luck.

    xx

  • Thank you all so much for your replies.

    Once maddie had settled to sleep, I coulnted her resps, which were 36 and she had recession and was struggling so I took her into our hospital through her open access to the ward.

    We have now been admitted. Her wheeze started not long after we got there, her recession got worse and her resps have gone up to 46! The wierd thing is tho, her SATs have been great, averaging 97!!!! Maddie has never had such high SATs, with her norm at about 92!!!! How wierd!!

    Thanks once again for you replies, support and advice.

    Emily. X

  • she is in the right place now, albeit captured in costa!! u followed ur maternal instincts then?

    bless her. hope her stay is a short one and she improves and u are home soon and she recovers quickly.

    get well soon maddie :)

    please let u know how she gets on.

    **big hugs**

    x x x

  • Hi Emily,

    I can only add to what has been said by everyone else, and that is you know your child best and as also said their chest may be clear(ish!) but some children (and adults) can go downhill so quick and you know you know the signs but you feel as a parent that maybe you are over reacting, but you know your child......... so we should never be afraid/worried of seeking help whenever.

    I hope Maddie improves real soon, and I hope you atleast feel reassured whilst she is in hospital (I know I used to feel so much more calmer when Louis was admitted to hospital and I know thats not nice but just having nurses around made me feel so much more secure).

    As my gp said to me the other week, I have earnt my ticket to paranoia (I just hope gp was being kind when he said that!!!)

    Take care and big hugs to you all

    Serenity xx

  • Hi Emily

    So sorry to hear after having such a good run you and Maddie are in hospital. I hope she is improving all the time and you will soon be home. Maybe her sats are so good because she has been doing so well on her new meds either way at least her sats are one less thing to worry about at the moment.

    Love and hugs to you both.

    Clare Xx

  • Hi Emily. So pleased you got help for Maddie and I hope very much that both of you are feeling much better for it.

    xx

  • just wanted to check see how maddie was doing and if u were out of hosp yet ?

    take care x x x

  • Thank you so much for your thoughts.

    We got discharged from hosp yest. Maddie is 'ok' at the min althought had yet another dodgy night last night again!

    Its strange as last week her symptoms were not like they normally would be prior to an attack hence this initial post! She always wheezes yet this time there was none!! Just recession and a mad respiratory rate!

    Thanks once again,

    Emily

  • Thank you so much for your thoughts.

    We got discharged from hosp yest. Maddie is 'ok' at the min althought had yet another dodgy night last night again!

    Its strange as last week her symptoms were not like they normally would be prior to an attack hence this initial post! She always wheezes yet this time there was none!! Just recession and a mad respiratory rate!

    Thanks once again,

    Emily

  • Please make sure she is using the AeroChamber spacer with her puffers.

  • Hi Emily

    Glad to hear you are home, I hope you have a better night tonight.

    Clare X

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