Hiya, i don't wish this to sound like i'm moaning, however my son has brittle asthma. Obviously he is poorly pretty much all the time. He is really uncontrolled and can't suddenly go blue and stop breathing on me. He has been in ITU and HDU more times than i can remember, he has had pneoumonia at least 9 times and bronchitis too lots.
He is now 9 and has been like this since birth, he has been on home oxygen, which has slowly been increasing (now 3ltrs), 2-3 hourly nebulisers during the day and night, various anti histamine's, montelukast, flixotide, servevent, prednisalone tablets, Phsyio and various suppliments, because he is also underweight to having such a fast heart rate. I have met a lot of younger kids this ill, but i am pleased to say i have known all but one to grow up of their illness. My lad is still suffering, and i for one could do with someone to bounce things off of. He is fine in himself a typical 9 yr old, only intrested in his dslite, xbox etc etc, But obviously our lives are always focused on him, even going shopping can be a total pain in the ...... you get the idea!!!
Anyway i just am here to say hi, and to see if anyone else is in a simular postion.
It looks like we will be heading down the sub cut route soon, not looking foward to that!
Thanks for reading!! Any replies at all would be great! x