I don't mean to come on here and moan but.....
Maddie, aged nearly 3, is the best she has EVER been since on maintenance pred. She has a quality of life for the first time since she was born! She can walk, laugh and play. It's amazing to see and brings tears to my eyes to see Ok, she now has adrenal failure due to the high steroids, which obviously brings huge problems, but as far as her asthma goes, she can breathe
Lottie, her elder sister, aged 5, has always had asthma too. However it ha always been alot miler than Maddie. Lottie has had the odd attack since a baby. She's on ventolin, serevent, montelukast and clenil. So alot less than her sister.
However she's now had 7 courses of pred since Christmas!! She's on a course of pred at the min, yet only finished the last about 2 wks ago!! Shes coughing and coughing! She tells me she's not got breath to eat or yawn!! Then she's ok, then she's not!! It's like a rollercoaster!!
I've always had Maddie to worry about. For 3 whole yrs, since she arrived, she's had breathing problems. Now she's kinda stabilised, lottie is now taking over!!!!
Why oh why oh why can't we have a break from asthma! I can't remember a whole week without asthma dominating our lives! It's like a cloud that hovers over and takes their breath away!
Don't mean to moan, just had to get it out before I scream!! Why us?!