I have just joined here , Though its my daughter who has possiable Asthma. (most likey does but because shes under 2 they wont say for defo).
Her history is form around 6 weeks old she was a constant wheezer and coughing all the time. When she got a could she got worse and worse. Around 6ish months she got a horrid chest infection and her whezzing and cough where awful. She was started on SIngular by my GP. But a few days later she was alot worse so was given inhlaers. brown and blue. she got over that epsoide but it took weeks.
Then last christmas i had one off the worst expeinces off my life. She had a cough/cold the week before xmas and seemed to get over it and was getting better for 2 days and wham she was poorly again. She was getting worse by the day and on 1st vist to the doctor on the tues as she was very wheezy and a nebuliser given (she as having some minor chest issue for a few months but nothing dignosed etc). which helped her for 24hrs a few days later, she was getting more and more lathrgic if you woke her she went right back to sleep and she normally only has 2 short naps a day, not feeding, sleeping all the time uncontrollable temp going form high to low all the time even with meds, very bad cough. we went back to the gp on xmas eve and while having a neb she started gasping for breath and so the go checked her sats and they where 70% but her colour was good etc.... the doctor started O2 and called an amblance
she was taken to a and e via blues and twos ..... once there they kept trying to stop her oxygen but she kept droping her levels, so was addmitted. to cut a long story shortish. The following night christmas day she took a really bad turn for the worse and couldnt stp coughing, low oxygen levels a breathing rate off well over 100 and a heart rate really high. She was taken to intensive care and had to be put on a ventilater to take over her breathing and let her rest. She was very very poorly.She was on the ventilater for 7 days after one unsucessful attempt to get her off on day 3. plus lots and lots of other treatments etc while on her stay in PICU. She was taken off the vent on new years day and lucky coped this time and went onto just oxygen. she was kept in for a few more days and we come home 4 days later.
she was offically dignosed with Swine flu while in hosptial and also refered to the respitory consultant.
She was re comencd on all her asthma meds and put on profolactil Azrotomycin?Sp.
She has been under them since. Since them she has had quite a few colds that have needed more inhlaers than normal. she is also has a asthma plan.
she was took off the anti bots in July.
This weeks she has had the worse cold and is awful at the mo and we ended up at a and e last night after maxing out on her salbut. She has been given a 3 day course of steriods (15mg of pred).
and is on 4hrly salbut and atrovent...
I am dreading this winter so so much, i so not sure what to do about any vacs and i know they are going to discuss it with me the nxt app (in oct). I not sure if shes going to have proflactic anti bots again this winter. I am dreading ending up in PICU again.
just wanted to share and hope i will be able to find more support here form parents going through the same.
Mummy to Martha.... and 2 other monsters... Joseph and finley.