Im sorry but this could be a long post im afraid, so i appologise in advance....
I will start from the begining...
At the age of 9 months, my daughter started having this cough.. this cough was so bad that it would actually make her vomitt. This was always worse at night.
After monthly trips to our GP (this going on for two years) and being prescribed anti biotics which never ever helped her. My daughter was being sick so often at night i was ending up with no bedding and endless washing 24/7.
After two years, the dr finally agreed to give us an inhaler (ventolin) which in the earlier stages, did help a bit. After 6 months, we went back due to her having another bad bout, and was given a diagnosis of asthma and a prescription for beclazone 50.
This in my opinion, has helped... until November last year.
Now we seem to be back at square one....
My daughter cant be outside or she is sick with the coughing, she hardly sleeps at night and is frequently woken up with the cough and is shoved about whilst i get her cleaned, changed and strip/remake her bed,
Now her nursery (private run) doesnt seem too happy to have her. They say that if she is not well enough to be outside, then she shouldnt be in nursery, but that to me is discrimation. She is asthmatic and yes, it can be a drag but its part of my daughter... she isnt allowed to gym and recently isnt allowed outside to play as this sets her off... i feel like her quality of life is suffering in a big way, and at the nursery,they said there isnt anyone available to sit indoors with my daughter when everyone is else is outside (this will be due to the child-carer ratio, which i understand but still ...)
She starts school next year and her attendance is going to be very poor at this rate as she has hardly been in nursery since before Christmas.
The poor thing cant even keep her dinners down at times, and so is hungry but her coughing is so bad she just brings it back up.
My two year old daughter is still sleeping in my room as she is unable to share her sisters room due to all the kerfuffle during the night, she would turn into a zombie like her sister and I.
Our GP put her beclazone inhaler up to 100 but told us there isnt much else they can do without reffering her case to hospital...
I feel like im going round in circles and going nowhere. I feel as though im failing as a mother because i cant help her... I can only sit back and do what i can, but what can i do?!
After endless trips to our GP, i feel we have gotten nowhere and she is getting worse...
Im constantly on edge waiting for the coughing and the vomitting. I keep trying to get her to sit quietly, reading books, watching tv and doing colourings etc... but at her age she wants to run about crazy like all kids her age...
We were given steroid tablets when she was 12 months, but the box said not to crush them and to swallow them hole, which at her age then was not possible... and my daughter has a phobia of oral medication so just getting calpol down her is impossible (she will actually make herself sick just to get rid of it )
If anyone has any ideas - at all - please share them with me because im not sure how much longer i can do this. I want to make things better for her, but for now i can only comfort her and provide her with the inhalers (beclazone 100, 2 puffs twice a day and ventolin - at the momment, she is having up to 8 puffs of that a day)
Also, would it be worth applying for DLA in regards to my daughters case? Or would it be unlikely that we would be granted any award?
Any help at all, would be so so SO much appreciated. It really would ...
Thankyou, for reading my long long post. (I had alot to say and get off my chest im afraid )