dla and young children: hi has anyone... - Asthma UK communi...

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dla and young children

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hi has anyone recived dla for a 2yr old with asthma?we have got our appeal on the 23 jan.i hope we get it as i have had to cut my working hours to care for t with his bad asthma.has anyone got any advice on what to do.we can getting help by the welfare right service.

tys mum

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Hi,

My little one gets DLA and has done since he was 2. Sadly you have to remember to state all the awful things that entail having a chronically sick child and leave out all the lovely glorious things. You end up feeling very sad because it makes your child sound so awful. Contact a family are a good starting point. Our local CaF has a brilliant family worker who would help and prob attend an appeal if we need it. Have you got Contact a family near you?

Good luck.

Margot

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Best thing you can do is to go to contact the citizens advice bureau as someone should be able to help you fill in the form. You are not always objective or honest enough when you do it yourself as none likes to admit how bad things are so getting someone to help you is very worth while.

The key thing to remember when fillingin the form is that your child must need more help than an average child of that age.

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Hi.. been awhile since my last post .. lost my comp :S. As far as i am aware, the child needs to be atleast 3 before they give DLA, although it is known to be younger in extreem circumstances. Good luck with the appeal, we didnt win our appeal when he was 2 1/2 or even manage to get DLA for shane untill his was 4-5.

Sharyn x

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My son received DlA when he was 6 mths old but they reviewed every year. It can be difficult to claim for little ones as all small children need lots of care so you have to prove they need even more care due to illness/disability.

Good luck

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I started receiving DLA at age 14, I had my nurses at the hospital and consultant fill out the forms and it all went through perfectly no questions asked. My mum could not claim for carers allowance though as although she works from home and is always there for me she technically works to many hours.

Tks xxx

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Oh also quick tip, when you fill out forms like this it is always handy to take a photocopy of them to keep for your own reference. If you want to appeal or things changed you can look back and see what you have put on your original forms.

Tks xxxx

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hi everyone, was reading though the threads and came accross this one.

I have an 11 year old son who has difficult to control Asthma. He takes ventolin, symbicort, tilade, singulair and pred. His peak flows are all over the place, best is 320 this morning was 80! not a great night as you can imagine.

Well I am responding to a DLA thread so I appologise in advance for a rather long rant.

We have been getting higher rate care since he was 7 and when his renewal went in we had hoped to be awarded lower rate mobility - we were told he could noyt get it at 7 as all children his age needed supervision outdoors. So now at 11 we thought we might have a chance. NO WAY. Although most of his friends now go to school on their own he can't as his Asthma is unpredictable and mornings are most often his worse time. We have had a few hospital dashs as he has become ill on the journey to school.

DLA (who obviously need better Asthma education) say that although he may benefit from some reassurance when when walking out side he has no need for supervision or guidance as ""he is of normal intelligence and is capable of using his inhaler when he feels wheezy"".

The appeal papers stated that although his walking would be limited during an acute attack this would not be for most of the time. It was assumed that in between ""attacks"" he would be able to function normally. What do they class as attacks? My son is wheezy at some point most days - his walking is affected most days to some extent. Do they class an attack as an episode that puts you in hospital? i explained that the only reason we own a car is for his benefit as without it he would struugle most days getting to school. They waved the magic inhaler at me and seem to assume that when you take it everything is fine.

we went to see a welfare rights adviser - who must have worked for DWP as his undrstanding of asthma was as shallow as theirs, who said we were lucky to get higher rate care (he could not beleive we got night time help as apparently all my son had to do was take his inhaler when he woke up and go back to sleep) and I would be a fool for rocking the boat going to appeal.

I am now a man on a mission (possibly mission impossible) as my wife and myslef both feel this lack of understanding about Asthma and it's affect on individuals and families needs to be addressed. How many people are turned down for the help they need because their condition is not seen to be disabling? I do not feel my son should be expected to deal with an attack outside on his own. I think that stopping to rest and taking his inhaler make him vulnerable - sad times I know. he would not ask for help if his condition deteriorated and would try to get to school or back home making an attack worse. He is a bad judge of how bad he can get and only accepts there is a problem when he is really struggling. I do not see this as acceptable.

TO APPEAL OR NOT TO APPEAL - THAT IS THE QUESTION.

Any views or experience on this would be appreciated.

Cheers Alex

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KateMoss

Hello,

There is a lot of ignorance around about asthma - all people see is the blue inhaler and they think that will fix it!

I was turned down for DLA twice then went to apeal - I lumbered in there with my 'portable' nebuliser ( they were quite big 10 years ago) , a huge list of meds etc and it was given to me within 15 minutes. ( I also represented myself!) (High rate mobility and middle rate care - I have brittle asthma use nebs, O2 and sometimes a wheelchair)

With the forms you should state that he is bad all the time he walks - if you give the hint that he is OK 10% of the time they won't give it.

I would try and appeal again, get loads of evidence, support from GPs, consultants, smpathetic teachers and any other health people you can.

It is all dependent on who looks at the form and who assesses you - peoples estimates vary! My first assesment was made on me walking 5 yards in my lounge and the doctor said I could walk a mile no problem! LOL Unbelievable!

Go for it and apeal - you can even get advice from CAB and also there is advice on the internet somewhere on form filling too!

Hope this helps & good luck

Kate

PS It has really helped me 'live'! And I have a Motability car too so can go out when I want!

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