Hi there, i`ve been reading all the posting`s on this forum and have gained a huge amount from them. My 9 year old daughter (Holly) has brittle asthma, she`s on load`s of med`s ( seretide 250 2 puff`s twice a day, salbutamol 2 puff`s when required ( she`s lucky if an inhaler last`s a week!) slo-phyllin 120mg twice a day, singulair 5 mg once a day, 30mg of prednislerone every other day and combivent for her nebuliser at least once a day) she has no allergy`s at all except to atropine and it`s a severe allergy. I was begining to feel very isolated and even very scared, i hate having to fill her with drug`s and i hate even more the horrible, nasty, awful side effect`s she suffer`s from because of these drug`s! but i know that we`re stuck between a rock and the deep blue sea.
I would feel like the world`s worst mother admitting that to anybody that didn`t see or feel the effect`s these med`s have on my child, but reading what`s here i know you`ve all been there and still are there.
My wee darling`s lucky to have a superb consultant, she`s seen him for 5 year`s now, every 4-6 week`s and he`s the only doc`s she see`s, no chopping, changing and the dreaded re-explaining everything from scratch, he`s almost like an uncle to her now, and i have the huge benefit of being able to get in contact with him easily, should she need him.
I do everything i possibly can to allow Holly the freedom to be a child and to try out everything she want`s, although 99% of the time my heart`s in my mouth! i`m sure most everybody reading this will completly understand.
Holly`s consultant recently spoke about changing her from prednislerone tablet`s to injection`s, to try and help reduce some of the side effect`s, and also said he was worried about something called Cushing`s syndrome, i`ve done a bit of research on the net about these, but was wondering if anybody else would have any info from experience?
Well thank`s for letting me rant and the best of health to you all, Fiona x