sorry for not posting in ages! its been a mad few weeks
Michaels breathing is same old same old, even with the azithromycin (he seems to be coughing ""drier"" now though)
About 3 weeks ago, he passed out at home aftrer complaining of chest pains. ambulance was called but by the time we got to hosp, he was chirpy as normal. ecg showed slight tachicardia so they reduced theo by half (it was the high end of normal) this was also in preparation for the effect that azithromycin on levels.
he was fine overnight but then a few days later it happened again without the ches pain, he just collapsed in bed and started mumbling incoherently, shaking etc. lasted less than a minute and he knew who i was after so i just contacted GP in morning after keeping an eye on sats and HR overnight.
Then again last week, he literally toppled over while colouring a book, only for 15-20 seconds, then he was awake but drowsy.
hes getting an eeg in the next couple of weeks to see if theres any abnormalities. this worries me more than the breathing issues cos i know how to cope and control them, unlike this!
i know this isnt an asthma issue but i need to let it out, been worrying me for weeks!hope the kids are doing ok (and that any investigations give you the answers that you need!)