Hi, My daughter Emily is 11 and has very brittle asthma. She has had numerous admissions to hospital. Our consultant has just referred her to Bristol to have tests etc. They are planning a Bronchoscopy at the mo, plus other things, all a little scary !! Bless her she is coping so well. Her asthma attacks come on with very little warning and we live 25 minutes away from the hospital.
We are at present stuck in the no go area for a neb !! One consultant says yes whilst another says no.
Emily has been on pred since January so almost certainly adrenally suppressed, awaiting synacthen test result. Emotionally she is very low and had enough of being asthmatic.We have both cried more times than i can count. She goes to secondary school in September, which should hopefully be ok as our respiratory nurse, Helen is fab and liasing with the school nurse.
All in all it has been a rough 12 months and it would be great to hear from anyone that knows what it feels like to have a poorly child or to be one !!
Cathy and Emily xx