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adenough profile image
7 Replies

does anyone else on here have long covid? Ive had it for three years now. It’s a real pain

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adenough profile image
adenough
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7 Replies
Toby14 profile image
Toby14

Hi I have long covid for a 1 year now. I too am sick of chronic pain. Practically lost my mobility and hardly go out now. I have constant nausea and have lost a lot of weight. I'm so tired. When will it ever go away. So sorry for you as well.

Annieosb profile image
Annieosb in reply to Toby14

Hello, I have COPD and contracted COVID 19 at the very beginning, because I had COPD my COVID was put down to chest infection and 3 sets of emergency meds later there was no improvement. Then 3 months later I had strange sore toes (COVID toe) I was immediately sent to the spacesuited staff and tested for COVID, which after 3 months was negative...I took a long time to semi recover, then last year I got covid again, just the very first day I went without a mask!! this made me very ill and I tested positive for almost a month...all without seeing anyone...hell!

I am now on oxygen 4 litters, hating it but trying my best to make a life with it. I can drive provided I use the prescribed amount. When sitting or at rest I dont need the oxygen, but the concentrators do not have a remote control, so by the time you walk to switch off and return to the chair you are breathless again. There are 2 concentrators in the house one up and one down.....7 tanks allowed a week, lasting 2 hours. So you have to ensure that if you go out you always carry a spare. I use a stroller.walking aid to carry the oxygen as it is heavy. If I shop I put the tank in the trolley.

Tricky life but it is a life and you have to try and work around it. Good luck

Ergendl profile image
Ergendl

So sorry you're still feeling so ill with long covid.

The Asthma and Lung UK charity has a web-page about your condition which you can visit here: asthmaandlung.org.uk/condit...

Hope this helps.

Musicalways profile image
Musicalways

Hi sorry you are experiencing this long covid journey. I have had it 4 + years

Jack70 profile image
Jack70

we’re you given antibiotics when you had Covid?

Annieosb profile image
Annieosb in reply to Jack70

No antibiotics dont work for Covid/.

SimonJJJ profile image
SimonJJJ

Hi, Yes since Dec 2020, but recently been diagnosed with ME/CFS.

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